Featured Patient Story
Len Strickland
I am Len Strickland and I was diagnosed with Hereditary Amyloidosis (ATTR) with a variant of Val122ile. There are over 100 different variants of ATTR based on culture and ethnicity. I learned of my affliction at the Mayo Clinic in Rochester, Minnesota on March 29 of 2007.
Hereditary Amyloidosis (ATTR and non-TTR) is a rare type of Amyloidosis that is caused by an abnormal (mutant) gene. Several abnormal or mutant genes can cause hereditary amyloidosis. There are other systemic types as well: AL, AA, and Wild-Type ATTR.
read moreLatest News Story Headlines
Mystery Solved: New Research Reveals Why a Key Protein Turns Deadly in Aging Bodies
Mystery Solved: New Research Reveals Why a Key Protein Turns Deadly in Aging Bodies
By Scripps Research Institute
An Unexpected Benefit of Adding the Patient Voice to Medical Education—Train Providers to Be Better
An Unexpected Benefit of Adding the Patient Voice to Medical Education—Train Providers to Be Better
Mackenzie N.
Light the Night for Amyloidosis 2025
"Light the Night for Amyloidosis" is an awareness campaign designed to raise awareness about the symptoms, diagnosis, treatment, and potential cure
Calendar & Upcoming Events
Webinar: Why most people fail when setting goals - How To Do It Right!
Webinar Session, Wednesday, March 19, 2025 at 6 PM (ET) Zoom Meeting
3rd Annual Bradley Z. Naifeh Amyloidosis Conference
Presented by: Bradley Z. Naifeh Amyloidosis Clinical Research and Treatment Program at Houston Methodist J.C. Walter Jr.
Webinar: Empowering Language: How Words Make a Difference
Webinar Session, Wednesday, March 26, 2025 at 6 PM (ET) Zoom Meeting
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$15.00FLASH SALE: Pick up our Zebra Shirt for $15.00 while supplies last! XL - SOLD OUT!
Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$15.00FLASH SALE: Pick up our classic T-Shirt for $15.00 while supplies last!
Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
Our Latest Webinar
Updates in AL amyloidosis: Fast Forward in 2024!
Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY
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