Featured Patient Story
Dustin Kaehr
I am 44 years old and 4th generation living with hATTR. My dad passed away at 53 and my grandpa at 61. I’ve been around hATTR as long as I can remember. When I was little (5-6 years old), our family was giving blood samples to IU Med Center for research. It came into our family through my paternal Great-Grandmother. At 26, I confirmed my diagnosis via a genetic test and then at 36 via a biopsy.
read moreLatest News Story Headlines
Mystery Solved: New Research Reveals Why a Key Protein Turns Deadly in Aging Bodies
Mystery Solved: New Research Reveals Why a Key Protein Turns Deadly in Aging Bodies
By Scripps Research Institute
An Unexpected Benefit of Adding the Patient Voice to Medical Education—Train Providers to Be Better
An Unexpected Benefit of Adding the Patient Voice to Medical Education—Train Providers to Be Better
Mackenzie N.
Light the Night for Amyloidosis 2025
"Light the Night for Amyloidosis" is an awareness campaign designed to raise awareness about the symptoms, diagnosis, treatment, and potential cure
Calendar & Upcoming Events
Webinar: Why most people fail when setting goals - How To Do It Right!
Webinar Session, Wednesday, March 19, 2025 at 6 PM (ET) Zoom Meeting
3rd Annual Bradley Z. Naifeh Amyloidosis Conference
Presented by: Bradley Z. Naifeh Amyloidosis Clinical Research and Treatment Program at Houston Methodist J.C. Walter Jr.
Webinar: Empowering Language: How Words Make a Difference
Webinar Session, Wednesday, March 26, 2025 at 6 PM (ET) Zoom Meeting
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$15.00FLASH SALE: Pick up our Zebra Shirt for $15.00 while supplies last! XL - SOLD OUT!
Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$15.00FLASH SALE: Pick up our classic T-Shirt for $15.00 while supplies last!
Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
Our Latest Webinar
Updates in AL amyloidosis: Fast Forward in 2024!
Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY
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